North-Western European Regional Workshop: "Defining needs and means to increase better collaboration between Patients, Patient Organisations and Other Clinical Trial Stakeholders"

Date: 10/12/2009, 09:00h to 10/13/2009, 16:30h

Location:
Central Hall Westminster
London, UK

Further information: http://www.patientpartner-europe.eu/en/workshops/nw-workshop

Description: When we think of the role of patients in clinical research, this might be limited to the thought of a patient being a ‘subject’ in a clinical trial. However, patients and patient organisations have much more to offer the clinical trial process. By using their experiential knowledge, patients have a potential role as partners in clinical research. A partnership between patients, patient organisations and the other key stakeholders – e.g. pharmaceutical companies and clinical researchers – will create new paradigms for which not only the patient will benefit, but also the quality, quantity and effectiveness of clinical research. In the end, such partnerships will contribute to better, patient-centred health care, and hopefully a more cost-effective quality research.

The North-Western European Regional Workshop, the first of the three (12 and 13 October 2009), will bring together stakeholders knowledgeable about the situation in Austria, Belgium, Denmark, Finland, Germany, Ireland, Luxembourg, Sweden, The Netherlands, the United Kingdom and also Iceland, Liechtenstein, Norway and Switzerland.

This workshop is the first of three regional workshops that are meant for dialogue on regional-specific opportunities and hurdles towards more partnership in clinical trials, for example in relation to access to information, patients’ rights, cultural and political aspects, relationship between the various stakeholders, etc. Your input as stakeholders is of a key importance, not only for these workshops: but for the implementation of the project’s results in your own region in the near future.

The information gained from the workshops and throughout the project will play an important part in creating recommendations for more and better patient partnership in the clinical trial process. Theresulting recommendations will be discussed and developed during a Final Central Workshop (Brussels, 2010). In the third and final year of the project (2010-2011) the recommendations will be worked out further and then addressed to key European stakeholders such as regulatory bodies, academia, industry, policy makers, patient organisations, etc.

Contact:
VSOP
Koninginnelaan 23
3762 DA SOEST
THE NETHERLANDS
Phone: +31 - 356 - 03 40 40
Fax: +31 - 356 - 03 74 40
patientpartner@efgcp.be
http://www.patientpartner-europe.eu/

Keywords: research ethics; research law; genetic research/technology; health system; medical ethics; pharmaceutics